Comments on: My introduction - 5 years of humiliation (advice needed) http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/ Thu, 20 Nov 2008 14:11:48 +0000 http://wordpress.org/?v=2.2.1 By: Paul George http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2333 Paul George Mon, 16 Jul 2007 09:36:07 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2333 Just to clarify... I was suggesting Head & Shoulders for the SCALP - leaving it on for the duration of the shower before thoroughly rinsing out. I also find H&S too rough for the face. For the face or other areas of the body, I recommend ZNP bar. It contains the same active ingredient as Head & Shoulders (pyrithone zinc) but is much gentler. I don't leave it on, though... I just massage it in and rinse it off. I've found it to be a little drying, so I'd recommend a gentle moisturizer. I use ZNP in the evening before bed and Cetaphyl bar cleanser and a moisturizer/sunscreen in the morning. This regimen works well enough for me that I don't need to use the ZNP bar daily. The flakes are essentially gone but some redness <!--more--> remains - but I suspect that is more related to rosacea than sebderm (but who knows for sure?) Jon Just to clarify… I was suggesting Head & Shoulders for the SCALP -
leaving it on for the duration of the shower before thoroughly
rinsing out. I also find H&S too rough for the face.

For the face or other areas of the body, I recommend ZNP bar. It
contains the same active ingredient as Head & Shoulders (pyrithone
zinc) but is much gentler. I don’t leave it on, though… I just
massage it in and rinse it off. I’ve found it to be a little drying,
so I’d recommend a gentle moisturizer.

I use ZNP in the evening before bed and Cetaphyl bar cleanser and a
moisturizer/sunscreen in the morning.

This regimen works well enough for me that I don’t need to use the
ZNP bar daily. The flakes are essentially gone but some redness

remains - but I suspect that is more related to rosacea than sebderm
(but who knows for sure?)

Jon

]]> By: Efrain Carey http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2329 Efrain Carey Thu, 12 Jul 2007 18:48:11 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2329 I find it very difficult to remove all the surface shampoo without rinsing in the flowing water stream from the shower. It takes a very slight residue of the detergent to cause a tight, dry feeling. I think that the body stores MSM a little, so a few days at 1000 mg to 2000 mg can be followed by a long term rate of 500 mg and keep the body's stores pretty well filled. More doesn't do harm, but just wastes the MSM. I find it very difficult to remove all the surface shampoo
without rinsing in the flowing water stream from the shower.
It takes a very slight residue of the detergent to cause a
tight, dry feeling.

I think that the body stores MSM a little, so a few days at
1000 mg to 2000 mg can be followed by a long term rate of
500 mg and keep the body’s stores pretty well filled. More
doesn’t do harm, but just wastes the MSM.

]]> By: Neva Marjory http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2328 Neva Marjory Thu, 12 Jul 2007 07:54:50 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2328 I tested it out by applying Head and Shoulders to too very itchy/burny areas of my face (one part was a little scaley, the other was just oily). I left the H&S for 5 minutes before rinsing it with water from the sink. I felt a burning sensation, and then afterwards nothing seemed to have changed except the skin seemed redder. I'm not sure if I rinsed thoroughly so I'm back to using Protopic to control it. Today I bought MSM supplements (1000mg per capsule). Any recommendation on how much I should take? I took one at 4 PM (20 minutes ago). I tested it out by applying Head and Shoulders to too very itchy/burny
areas of my face (one part was a little scaley, the other was just
oily). I left the H&S for 5 minutes before rinsing it with water from
the sink. I felt a burning sensation, and then afterwards nothing
seemed to have changed except the skin seemed redder. I’m not sure if
I rinsed thoroughly so I’m back to using Protopic to control it.

Today I bought MSM supplements (1000mg per capsule). Any
recommendation on how much I should take? I took one at 4 PM (20
minutes ago).

]]> By: Efrain Carey http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2327 Efrain Carey Wed, 11 Jul 2007 22:30:14 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2327 johnjay198 wrote: > I tried applying the Head and Shoulders the way Jon suggested. It > doesn't work. It made the scales worse. It's like I'm a serpent now. I am unhappy to hear that the experience was a bad one. But please help others out by describing what you tried, in more detail. How long did you let the H&S sit on your skin before removing it? How did you remove it (tub bath, wash cloth, shower)? Did you rinse briefly or thoroughly? Do you think you might have still tasted like shampoo, if you would have licked the <!--more--> skin that had been treated? Was the skin you used on covered in scales (which makes it hard to remove the shampoo residue) or fairly closed surface? And please report back in a day or three, how the redness and new scales recovered, compared to what you would have expected without this treatment. Thanks for documenting your trial in the archive of this forum. It may help others do better in the future. John Popelish johnjay198 wrote:
> I tried applying the Head and Shoulders the way Jon suggested. It
> doesn’t work. It made the scales worse. It’s like I’m a serpent now.

I am unhappy to hear that the experience was a bad one. But
please help others out by describing what you tried, in more
detail.

How long did you let the H&S sit on your skin before
removing it?

How did you remove it (tub bath, wash cloth, shower)?

Did you rinse briefly or thoroughly? Do you think you might
have still tasted like shampoo, if you would have licked the

skin that had been treated?

Was the skin you used on covered in scales (which makes it
hard to remove the shampoo residue) or fairly closed surface?

And please report back in a day or three, how the redness
and new scales recovered, compared to what you would have
expected without this treatment.

Thanks for documenting your trial in the archive of this
forum. It may help others do better in the future.

John Popelish

]]> By: Efrain Carey http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2326 Efrain Carey Wed, 11 Jul 2007 12:21:15 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2326 Not only do different ingredients have different effects, the same ingredient can have different effect at different times. T-Gel used to work well for me, as a temporary fix, but a year after I had a very bad reaction to a bee sting, just bathing with T-Gel caused me to get something like a severe sun burn. It was bad enough that I peeled all over, everywhere I came in contact with the lather. I couldn't believe that the T-Gel was the cause, since I had used in off and on for years. So I waited a couple months and tried it again. Same result, painful burn for a couple days, followed by massive peeling. Bummer. I haven't had the nerve to try it in 3 years, since. John Popelish Not only do different ingredients have different effects,
the same ingredient can have different effect at different
times. T-Gel used to work well for me, as a temporary fix,
but a year after I had a very bad reaction to a bee sting,
just bathing with T-Gel caused me to get something like a
severe sun burn. It was bad enough that I peeled all over,
everywhere I came in contact with the lather. I couldn’t
believe that the T-Gel was the cause, since I had used in
off and on for years. So I waited a couple months and tried
it again. Same result, painful burn for a couple days,
followed by massive peeling. Bummer. I haven’t had the
nerve to try it in 3 years, since.

John Popelish

]]> By: Paul George http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2324 Paul George Tue, 10 Jul 2007 11:30:25 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2324 WOW... that was quick! Was this after just 1 shampoo? The only time I've ever experienced anything like that was when I didn't rinse shampoo (H&S or otherwise) thoroughly enough, leaving me itching like crazy and flaking worse than usual. Did you rinse the shampoo out at the end of your shower? If so, I'm not sure what to suggest. It could be that your scalp is so irritated right now that anything you do will cause more irritation - at least until you're able calm things down enough to make some progress. I also wonder if you can make a fair judgement after just one shampoo, as it usually takes me at least 3 days before I know if something is working. (But then again, you seem pretty sure!) <!--more--> Have you tried other shampoos with different active ingredients, like ketoconazole (Nizoral), Selenium Sulfide (Selsun Blue), salicylic acid (Ionil) or coal tar shampoos (Neutrogena T-Gel)? Different things work for different people - and even at different times for the same person! For me I get good results from H&S... but if I was really suffering, I would reach for T-Gel - for me that's my treatment of last resort. I encourage you to try different things to find what works for you. There are a lot more options when it comes to shampoo for your scalp than treatments for your face, since the skin on your face is much more sensitive. ZNP bar may not help your face if H&S doesn't help your scalp (since it's the same active ingredient) but I wouldn't tell you not to try it - since it has dramatically reduced my facial sebderm. Good luck and don't give up! Jon WOW… that was quick! Was this after just 1 shampoo?

The only time I’ve ever experienced anything like that was when I
didn’t rinse shampoo (H&S or otherwise) thoroughly enough, leaving me
itching like crazy and flaking worse than usual. Did you rinse the
shampoo out at the end of your shower?

If so, I’m not sure what to suggest. It could be that your scalp is
so irritated right now that anything you do will cause more
irritation - at least until you’re able calm things down enough to
make some progress. I also wonder if you can make a fair judgement
after just one shampoo, as it usually takes me at least 3 days before
I know if something is working. (But then again, you seem pretty
sure!)


Have you tried other shampoos with different active ingredients, like
ketoconazole (Nizoral), Selenium Sulfide (Selsun Blue), salicylic
acid (Ionil) or coal tar shampoos (Neutrogena T-Gel)? Different
things work for different people - and even at different times for
the same person! For me I get good results from H&S… but if I was
really suffering, I would reach for T-Gel - for me that’s my
treatment of last resort. I encourage you to try different things to
find what works for you.

There are a lot more options when it comes to shampoo for your scalp
than treatments for your face, since the skin on your face is much
more sensitive. ZNP bar may not help your face if H&S doesn’t help
your scalp (since it’s the same active ingredient) but I wouldn’t
tell you not to try it - since it has dramatically reduced my facial
sebderm.

Good luck and don’t give up!

Jon

]]> By: Paul George http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2323 Paul George Tue, 10 Jul 2007 01:21:26 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2323 Ask your phamacist. They may not have it in stock but they can order it for you. It costs about $6 and lasts forever. I've also seen it available online, such as Amazon.com. Jon Ask your phamacist. They may not have it in stock but they can order it
for you. It costs about $6 and lasts forever. I’ve also seen it
available online, such as Amazon.com.

Jon

]]> By: Neva Marjory http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2320 Neva Marjory Sun, 08 Jul 2007 12:34:02 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2320 I tried applying the Head and Shoulders the way Jon suggested. It doesn't work. It made the scales worse. It's like I'm a serpent now. I tried applying the Head and Shoulders the way Jon suggested. It
doesn’t work. It made the scales worse. It’s like I’m a serpent now.

]]> By: Neva Marjory http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2319 Neva Marjory Sun, 08 Jul 2007 02:25:03 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2319 Where can one buy the ZNP bar? Where can one buy the ZNP bar?

]]> By: Paul George http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2318 Paul George Sat, 07 Jul 2007 22:36:32 +0000 http://www.seborrhoeic-dermatitis.ev-by.org/2007/07/04/my-introduction-5-years-of-humiliation-advice-needed/#comment-2318 Wow not to jump into the middle of this, but I will add two throughts: 1. I start my shower by shampooing my hair with Head & Shoulders, massaging it into my scalp, and I don't rinse it off until the end of my shower. So it stays on my head for just a few minutes. I think I learned this from Nizoral or something (I know some shampoo recommends this or at least used to). So far I haven't had any problems (no brain damage that I can see, LOL) and my dandruff has definitely been improved. 2. For my face I used ZNP bar, which is the same ingredient as Head & Shoulders but a more gentle formula for the face. I wash my face thoroughly, gently massaging the soap into problem areas like my eyebrows, but I rinse it fairly quickly. My facial skin is too sensitive to mess with. <!--more--> Before buying the ZNP bar I tried using Head & Shoulders shampoo on my face and found it rather harsh. I would never leave it on my face for a long period. I'd come away bright red, I think. I use the ZNP bar in the evening before bed and just use Cetaphyl cleansing bar in the morning. My understanding and experience is that cleaning is important too to remove skin flakes, oils and other stuff that can make sebderm worse. Good luck. There are a lot of "snake oil" type products out there. Be cautious and do your research, talk to your doctor, and find a regimen that works for you. You may never cure your sebderm but you can control it if you find the right regimen. Jon Wow not to jump into the middle of this, but I will add two throughts:

1. I start my shower by shampooing my hair with Head & Shoulders,
massaging it into my scalp, and I don’t rinse it off until the end of
my shower. So it stays on my head for just a few minutes. I think I
learned this from Nizoral or something (I know some shampoo
recommends this or at least used to). So far I haven’t had any
problems (no brain damage that I can see, LOL) and my dandruff has
definitely been improved.

2. For my face I used ZNP bar, which is the same ingredient as Head &
Shoulders but a more gentle formula for the face. I wash my face
thoroughly, gently massaging the soap into problem areas like my
eyebrows, but I rinse it fairly quickly. My facial skin is too
sensitive to mess with.

Before buying the ZNP bar I tried using Head & Shoulders shampoo on
my face and found it rather harsh. I would never leave it on my face
for a long period. I’d come away bright red, I think.

I use the ZNP bar in the evening before bed and just use Cetaphyl
cleansing bar in the morning. My understanding and experience is that
cleaning is important too to remove skin flakes, oils and other stuff
that can make sebderm worse.

Good luck. There are a lot of "snake oil" type products out there. Be
cautious and do your research, talk to your doctor, and find a
regimen that works for you. You may never cure your sebderm but you
can control it if you find the right regimen.

Jon

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