Top 5 tips/products
On the rosacea listserve everyoen is posting theit top 5
tips/products for dealing with skin problems. It thought it might be
productive if we did the same. I have recently had a bad reaction to
Elidel and Fluocinide. Recently prescribed Ketoconazole isn’t
helping. And denorex has completely dried out my skin so I am wide
open to suggestions. But here are my top 5
1. Aloe: works best in the summer less so in the winter. Reliefes
redness but can irritate if used to much
2. Cetaphil moisturizer: for dry and sensitive skin. Very light and
good for dryness. Though I cna only use it every so often as it can
irritate.
3. Cetaphil gentle skin cleanser: Good for a night time rinse of
the face though doesnt help when I have a lot of dry skin on my
forehead.
4. Cool temperatures: I don’t use the furnace in the winter.
Though its freezing everyone out it really helps.
5. Not over medicating. That is where I am at now. My skin is dry
and red partially from the SD but also from the stuff I am using to
treat it. Still trying to figure out a system for treating this
problem that doesnt lead to worse problems.
*Note: I have thrown Elidel in the trash after having hot flashes
and my nose and forehead flushed with blood. Nasty stuff though it
worked well for a while. I tried fluoconide on my scalp a few days
after stopping Elidel and had a similar reaction. Now that I have
stopped I hope those symptoms don’t come back. I need a better
shampoo and face treatment. Preferably somethign that doesnt roach
out my skin and actually improves the condition.
April 18th, 2007 at 6:18 am
Following your lead i will post my top list; however
i’m in trouble to fill all 5 places, since i’ve
achieved great stability of my SD with just two; a
liquid soap and a shampoo:
shampoo: node DS from bio derma. This is a shampoo
specifically for "itchy and scuameous state of the
scalp" as announced in the case, i use this every two
or three days and i forget i have SD.
soap: not a specific brand, liquid soap with cocamido
propyl betaine milk with pH on the 3.5 ~ 4.5 range.
Use this to wash your face neck and ear region
April 18th, 2007 at 3:29 pm
Hi Kev
I don’t know about cancer but it does cause damage to the skin over
time and can lead to other skin conditions (rosacea, broken blood
vessels etc). Most of the people on here are seeking alternatives to
steroids and rightly so. 2.5% is quite a high concentration and I
would strongly suggest that you attempt to ease yourself off it and
seek a longer term solution.
SQUEAMISH PEEPS LOOK AWAY NOW!! - Mad as it sounds i’m 2 weeks into
testing out urine therapy (a glass of my own amber nectar am and pm),
in adition to my cider vinegar routine (see previous posts). If
anyone can pluck up the courage - google it. I think I’m seeing some
improvements in facial skin integrity but am giving it 2 more weeks
before I feedback on here,
Wee Simon
April 19th, 2007 at 5:17 pm
Here are my Top 5 Seb Derm Tips:
1. Use Head and Shoulders Intensive Treatment Shampoo a couple of
times a week. Leave on for a few minutes and allow it to wash over
your face too.
2. Vitamin B5. It works for me. Reduces oil and redness. Check it out
at vilantae.com
3. Boswellia serrata. It’s a supplement. Reduces oil and redness.
Available at most health food stores.
4. Purpose moisturizer.
5. Electric shaver. Much better than blades and shaving cream.
Happy New Year to all on the list. This list has helped me immensely
and I hope it’s done or will do the same for you.
Tim
April 20th, 2007 at 4:25 am
When you say ’soap: not a specific brand, liquid soap with cocamido propyl
betaine
milk with pH on the 3.5 ~ 4.5 range’
Where can I get this kind of soap and what brand or name is it called?
.
> Use this to wash your face neck and ear region
Hi Kev
I don’t know about cancer but it does cause damage to the skin over time and can
lead to other skin conditions (rosacea, broken blood vessels etc). Most of the
people on here are seeking alternatives to steroids and rightly so. 2.5% is
quite a high concentration and I would strongly suggest that you attempt to ease
yourself off it and seek a longer term solution.
SQUEAMISH PEEPS LOOK AWAY NOW!! - Mad as it sounds i’m 2 weeks into testing out
urine therapy (a glass of my own amber nectar am and pm), in adition to my cider
vinegar routine (see previous posts). If anyone can pluck up the courage -
google it. I think I’m seeing some improvements in facial skin integrity but am
giving it 2 more weeks before I feedback on here, Wee Simon
April 27th, 2007 at 6:07 pm
Elidel is one of the worse things ive tried, it works for a while i
guess is because it is for psoriasis. this is my top 5
1. apple cider vinegar: i use one from the supermarket since i
couldnt find the acv with mother. I dont follow the others group
methods to the t, i use my own my skin cant handle 100% pure vinager
i dilute it 1 part vinager 8 parts water and works fine. This is the
best thing ive found and ive tried almost everything.
2. Vitamin E gel caps: i use it as a mosturizer cause the acv after a
while gets your skin very dry and you’ll need a mosturizer. But ive
found that if you use in a cold place instead of helping makes it
worse. Put some vitamin gel for 1 hour or so after using the vinager.
3. Aloe Vera pulp: i have a tree of aloe vera and im using this from
about three days, i see some results, defenetly does some good effect
on the sd. ill post later if it works.
4. …. i dont have anything else to add to the list, those are the
best thing ive found so far. ill post all the things ive tried and
didt work or just didnt work as well as these three. ive tried
cortisones (steroid creams), elidel, protopic, ketoconazol, Head and
shoulders, rosac, eucerin products, yogurt, almost all the oils u can
find, batrafen (antifungus), etc.
April 28th, 2007 at 7:05 pm
Hi
Lots of people seem to get on well with cetaphil wash - but i asked
in a few shops and got a blank look
Does anywhere in the uk sell it?
Thanks,
Simon
April 30th, 2007 at 9:50 pm
Ahhhh americano cetaphil. Thats no good!! O well I hope someone in
the UK can help. Thanks for responding.
I posted a few weeks back ref drinking my own urine.
I’ve been doing it twice a day for exactly 1 month. My skin integrity
seems to have improved and its coincided with cider vinegar (full
strength) not burning so much and a general upturn.
I’m gonna do a proper feedback post in a month’s time so I can be a
bit more sure of the progress. I would however encourage people to do
a search on urine therapy although i’m not as yet gonna stomp my feet
about it.
I am however continuing to stomp my feet about cider vinegar.
Simon
May 1st, 2007 at 1:32 am
It ain’t no god’s gift to man. Aquaphor is better, but I like non-petroleum
ointments the best. Lotions and creams just make me worse.
Vera