Glad to have found you…but sad I have to!

Hello everyone,

I am very happy to have found an online support group to deal with SD!
I have been diagnosed with it three times since last September.
However, I am willing to take whatever action I need to before I am
made into a believer.

Long story short: late last summer, I started taking an herbal
supplement called "Fertility Blend". About a month after taking it, I
noticed my scalp started itching and flaking which quickly led to the
skin behind my ears to crack and bleed, followed by a rash on the sides
and back of my neck. My hair started falling out at a drastic rate.
Immediately quit using the Fertility Blend (although I inquired with
the company regarding this side effect, they said it was not a noted
side effect). Went to a dermatologist who immediately diagnosed it as

SD but failed to truly explain what that meant. I used the
prescription shampoo (Nizoral, I believe) followed by a daily
application of Betamethasone. Although my hair was very dry and
brittle, it cleared up in two weeks and I resumed with my regular hair
products. Dry, itchy, flaky scalp returned again. Went to my general
practioner who said that it was SD brought on by depression and/or
stress. I disagree with the depression aspect.

I began using the Nutragena shampoo for itchy scalp, it helped however,
my hair was extremely dry, breaking off and I continued to lose hair.
I have now since February been switching shampoos every three days in
order to keep SD to a minimum. I have used organic tea tree oil
(again…left my hair dry and course) and other typical otc brands
which make my hair *seem* healthy. However, the outbreak starts again
very quickly.

I went to a different dermatologist last week who once again diagnosed
SD. After and in depth conversation with him and lots of research, I
now understand what I am dealing with. :(
So, my problem is the shampoos that help are hard on my hair; those
that make my hair nice, soft and shiny cause me extreme discomfort
within 2-3 days before I switch again.

My question to you all is: where do I go from here? I only have the
outbreak on my scalp and without proper treatment it does spread around
my neck and behind my ears. Can you recommend shampoos that you have
tried that do not dry out your hair and cause it to be brittle? How
often do you use these shampoos (in conjunction with another shampoo?)
Is there an herbal remedy you recommend?

I am just not convinced that I am NOT allergic to something in the hair
care products that I am using (although I have used probably 10
different brands in the last two months). However, the three doctors I
have visited are not interested in conducting an allergy test.

OK…that was actually a long story, lol. Please offer any suggestions
you may have as I go forward in learning to live with this. I have had
about all this I can take and I am frustrated, tired of crying about it.

Thanks.
Stephanie

3 Responses to “Glad to have found you…but sad I have to!”

  1. June Preston Says:

    Chances are slim that you are allergic to something in the shampoos as SD is
    not really a allergic condition, but moreso an automimmune disorder like
    psoriasis. Iit is just that the effective ingredients to treat seb derm
    generally are not that great for your hair because the shampoo is meant to
    be a scalp/skin treatment.

    I have found that Loreal Vive for Men with Pyrhtione Zinc and Garnier
    Fructis with Pyrhtione Zinc are the least drying. You can also try Head and
    Shoulders 2 in 1 (shampoo and conditioner). You can use any of these
    shamppos daily with out having to switch to a non-dandruff shampoo. If I
    use a regular shampoo, my SD comes back almost instantly. These shampoos all
    cost about $5 each so you won’t break the bank by doing soem trial and
    error. Hair gels and hair sprays will also aggravate SD so stay away from
    them


    You should also try apple cider vinegar on yoru scalp 1 to 2 times per week.
    This stuff works the best for getting rid of the itching.

  2. June Preston Says:

    Blood tests won’t identify seb derm. The basics of this condition is that
    our skin reacts abnormally to normal fungi living on our skin–several types
    of inflammatory skin cells go bonkers when the fungus excretes its waste
    products. Seb derm only effects about 5% of the population, so the other
    95% of the population, while having the same amount of fungus on their skin,
    and that fungi excreteng the same amount and type of waste, don’t get the
    same inflammatory response that we do. Our cells go into this inflammatory
    cycle because they are perceiving a hostile threat, even though in reality,
    the fungus poses no threat at all.

    When the skin goes into inflammatory mode, it becomes very red and sensitive
    (flare-up) and then attempts to renew/heal itself (the flaking)–however,
    unless the inflammatory response is stopped, this cycle continues on,
    seemingly indefinitely. This is why the condition is so frustrating.


    Other things may have effects on seb derm flare ups as well, such as
    temperature, humidity levels, certain foods, and other topical irritants
    (like checmiclas in soaps, shampoos, hair spray, etc etc). But hte basiic
    cause of seb derm is that our cells are having an abnormal response to some
    thing that is quite normal–that is my high level understanding of an
    autoimmune disorder, so until the cells either naturally de-program
    themselves (doubtful), or it is done chemically (topically or internally),
    the cycle will pretty much continue.

  3. Lilia Kane Says:

    Hi Stephanie.

    I probably mention this in every post I make to this group, but of
    course I do so because I really believe its important. Try avoiding
    the following:

    Sodium Lauryl Sulfate
    Sodium Laureth Sulfate (Sodium Lauryl Ether Sulfate)

    Most people don’t have a problem with them, but Seborrheic Dermatitis
    makes your skin ultra-sensitive. I find that If I use anything
    containing these ingredients (apart from toothpaste and shaving gel
    for some reason) my skin becomes dry, itchy and red.

    You will find one or the other in over 90% of shampoos. Even those

    meant for sensitive skin. Which could explain your still having
    problems even though you’ve tried several different products.

    There are some Neutrogena T/Gel shampoos that contain these chemicals
    and some that don’t. I believe the one that is labelled for treatment
    of Seborrheic Dermatitis DOES contain them. Go figure.

    Anyway, the one I use is "Neutrogena T/Gel Shampoo Sensitive Scalp".
    It doesn’t contain SLS or SLES and is also fragrance free. I just use
    it once a day and it seems to keep things under control.

    Good luck!

    Richard

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