Sunscreen
Went to Jamaica for a week and what worked extremely well was Banana
Boat sunscreen. I’m talking night and day from day 1 of the trip to
day 8. I plan to continue using it in the redder areas (which are not
so red at the moment). I had Ovace gel prescribed so I’ll pick that
up sometime this week. I continue to use Jojoba oil on the eyebrows
and in/behind the ears. Has worked pretty well. It goes on
sticky/shiny but dries fairly quickly (not like say Vaseline) but the
flakes are not there on only slightly there at the end of a work day.
I pray one day they find a cure but I’m guessing not enough R&D
dollars go into something that is more or less a nuisance to the
medical community (versus say cancer research).
Most days are not a problem but the day I flew to Jamaica was horrible
and it is difficult not to get overly concerned about it, even at my
age in the mid-30s. Everyone just wants to fit in and not look
"different" in a negative way.
I appreciate those that post ideas and suggestions - we’re the only
support we have because most people can’t relate to the impact this
disease can have to self-esteem, etc….