what´s your opinion about sunbathe?

Hi everyone,

I’m still using Essex and it works just fine. Now I wonder what experience
you have with the sun? Does it make the skin worse or do you think it makes
it better? Everyone who have noticed someting, please tell me about it.
I also wonder if anyone of you have noticed any reaction after eating
strawberries? And finally, how many of you can eat icecream without any side
effects?

Summergreetings, Tina

10 Responses to “what´s your opinion about sunbathe?”

  1. Blair Blair Says:

    I think a moderate amount of natural sun does more good than bad–first, it
    may make the red areas not stick out so much and second I think it helps
    kill some of the fungus. However, don’t let yourself burn.

    The Bclear Photoclearing is a UVB treatment and supposedely it clears up seb
    derm and psoriasis–it has FDA approval for treating seb derm so I would
    think that it was somewhat helpful–i am going to begin searching for a derm
    in my area that has this laser to try to get more info about cost and
    success rates–it is very new so would probably be hard to find one.

    Stay away from the tanning salons because I think, but don’t quote me, that
    they only use UVA bulbs.

    Can’t comment about the strawberries because i have sworn off all fruit
    because of the high sugar content.

    And about ice cream, that is the absolute worse and number one trigger for
    me–I will break out with flares within 24 hours of eating just a
    little–however, they do make sugar free ice cream which is sweetened with
    Equal and it is not bad at all

  2. Lucas Shea Says:

    Tina, I have heard that sebderm is supposed to improve
    with a little sun, but if I get any appreciable amount
    of sun, I have a worsening of my sebderm. This is an
    especially big bummer for me because I live in
    Arizona, where it is hard NOT to get sun.

    On a happier note, I eat ice cream all the time and it
    doesn’t have an effect. Neither do strawberries. I
    have done all sorts of experiments with diet and have
    found that there is no correlation between my diet and
    my sebderm. I even went on an all-clear-liquid diet
    for a week (not by choice - I had surgery) and there
    was no change for better or worse. I have also
    experimented with various supplements and have noticed
    no resulting changes. I have gone on virtually

    no-carb diets, no-yeast diets…you name it. Nothing
    affects the sebderm. I guess that’s a positive in the
    sense that nothing seems to worsen it — I drink lots
    of beer and eat lots of ice cream :)
    If only there were a food to make it better…

    Sandy

  3. Walker Cooley Says:

    Thanks to you Ralph and also thanks to Sandra and the others of you who have
    answered.
    We have a wonderful weather here now and after making a decision I have now
    begun spending some time on the beach, under the sun. I use Clinique’s
    suntan lotion and hope this will be ok for the skin after using it several
    times.

    Now anoher question for you. Can you exercise without making the sebderm
    active(worse) again?

    Summergreetings,
    Tina

  4. Lucas Shea Says:

    Tina, sadly I get bad outbreaks after exercise. The
    only exercise that doesn’t have that effect is
    swimming, maybe because there isn’t any sweat sitting
    on the skin.

  5. Blair Blair Says:

    Yes, from my experiences, sweating makes me much worse–gives the litle
    fungi more good stuff to feed off.

    I try to excercise indoors mostly so that I don’t sweat–I think excercise
    is important becasue seb derm can proliferate if you live a sedentary
    lifestyle.

    I used to be a restaurant manager, on my feet and running around 10+ hours a
    day, six days a week, and my seb derm was basically non-existant–when I
    got my desk job about two years ago my seb derm has become a major, everyday
    problem. Could be coincidence, but I also find that on the weekends when I
    am much more active, my seb derm seems to do better for a few days following
    a lot of activity. I have tried exercising in the morning and at night, but
    I think you need to be moving constantly during the day to really make a
    difference–

    Sandra, by the way, can you give us a Tea Tree Oil update–is it still
    working for you–let us know.

    Thaks,
    RJ

  6. Lucas Shea Says:

    Ralph, the tea tree oil is still "working" in its odd
    way, in that it still keeps my skin looking better
    once I deflake. I am definitely still having to
    deflake, though, and I think maybe tea tree oil could
    be a great partial solution in tandem with rotating
    use of selsun and ketoconazole. Maybe the selsun and
    ketoconazole will help prevent the flakes from
    forming, and the tea tree oil will make whatever
    flakes DO form flake right off easily. I have been
    thinking about using selsun again, along with the tea
    tree oil, to see what that does. Both selsun and
    ketoconazole cream were almost complete "cures" for me
    for about three weeks each, then they stopped working.
    Does any one know — are these things likely to work
    again if it has been a few months since I used them

    and they stopped working? When the selsun stopped
    working, I switched to the ketoconazole.

    Ralph, have you been using the tea tree oil and/or
    soap?

  7. Blair Blair Says:

    Sandra,
    Do you get really bad redness from your sebderm or do you just have the real
    flaky variety–if you get the deep redness areas, is the Tea Tree helping to
    alleviate the redness and inflammation at all–I can deal with the flaking
    and then deflaking, but for me, most of the the time when I deflake, the
    redness is still there so as bad as the layers of flakes look, it looks
    better than the redness which is my real concern these days.

    As far as the Selsun and ketacanozole, they lost effectivenss with me as
    well and I think that you may have luck introducing them again if you have
    not used them recently–for me right now, I can’t use anything that is too
    harsh or too drying.

    I have only used the soap a few times and it is does not really irritate me
    but I don’t think it is doing anything either–I have not bought the oil yet

    but am interested in trying but if you can tell me if it alleviates redness,
    then I will try it.

    Also, has anyone ever tried Emu oil–it supposedly is a good
    anti-inflammatory.

    Thanks,
    RJ

  8. Lucas Shea Says:

    Ralph, I don’t think it is the soap that’s really
    helping me — it’s the oil. As far as redness is
    concerned, it definitely seems to help. HOWEVER, for
    the first two days or so, the redness got dramatically
    worse, but I was also going off of the ketoconazole.
    Selsun didn’t do this to me when I stopped using it,
    but when I tried to go off of the ketoconazole I ended
    up not being able to because I had such redness and
    PAIN, not to mention massive flaking. Using the tea
    tree oil, I was able to go off of the ketoconazole
    FINALLY (it had long since stopped working). So, to
    make a long story even longer, I don’t know if the tea
    tree oil irritated my skin for the first two days or
    if it was the cessation of the ketoconazole — I
    suspect the latter. Having said that, though, I think

    that one of the reasons that my face was red and
    irritated much of the time before I started using the
    tea tree oil was that I was removing the flakes, and
    possibly they weren’t quite ready to come off nicely.
    As a result, my skin was ALWAYS red and irritated.
    Maybe because the flakes come off so neatly with the
    tea tree oil, my face is MUCH less red and actually
    not at all irritated. One thing that has made me very
    happy with the tea tree oil is that it seems to
    especially help a really annoying area for me, my
    nostrils. I used to have serious flaking and redness
    around my nostrils, and that area (KNOCK ON SERIOUS
    WOOD) is in great shape.

    In short (NOT :) I would definitely try the oil.
    It’s really cheap, and it just might help in some way.
    I started it on a Friday night so that I would have
    two days to hide in my house if need be!

  9. Blair Blair Says:

    Thanks alot for this info Sandra–I am glad to hear that the tea tree can
    help with the redness–seems like you are doing pretty good with this stuff
    so far.

    I know exactly what you are saying about deflaking before your skin is
    ready–same thing happens to me when the flakes are not ready to come
    off–the skin underneath is extremely red and very sensitive–seems like the
    tea tree is helping to kill the fungus and acting as an anti-inflammatory at
    the the same time which may explain why you are getting less redness and
    less flaking.

    I am going to pick some up this weekend as well and give it a try–if it
    doesn’t work, I will just add it to my tea tree shampoo.

    I am also eagerly anticipating the release of the new sensitive skin DRL

    lotion to try on my real sensitive areas on forehead, eyebrows, bridge of
    nose–the effect that it has had on my milder seb derm areas around my nose,
    mouth and ears has been amazing–that skin is 99% normal at this point and I
    only need to use the DRl sparingly (once or twice a week) to keep away the
    redness and dryness.

    RJ

  10. Lucas Shea Says:

    Even if it turns out that it doesn’t help you that
    much, it sure feels great on oily skin. I am not very
    prone to breakouts now that I’m old (31), but I will
    get the occasional isolated one here and there. Since
    I began using the tea tree oil, my skin is totally
    soft and COMPLETELY breakout-free. If breakouts are
    an issue for you, then this could be a godsend.

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