Protopic Update
I’ve been using Protopic for almost a week now, together with Head &
Shoulders Intensive Treatment, and it really does work. There’s no
flakes at all, where talking 100% flake-free, and 90-95% of the
redness that have been torturing me for a long time, is gone. It’s
amazing, and my self-esteem is back. I use H&S on my hair and face,
and the oily skin I had has also got better. Maybe this is the
ultimate combination that keeps this crap under control? It’s working
for me, and I hope it will continue to do so.
To those of you out there who are suffering from seb derm in the
face, flakes and redness, get Protopic ASAP. There’s no need to
suffer when this wonderful product now is available. If you can’t get
it from your doctor, have a look at usamedicine.com, it may be a bit
expensive, but imagine how a "normal" face could make your life so
much easier and fun!!!
January 21st, 2003 at 4:55 pm
Can you tell me how you apply the H&S? Do you use it as a cleanser for the
face or just put the suds on after you cleanse?
Diane
January 23rd, 2003 at 9:28 am
— In sebderm@y…, DWicke8683@a… wrote:
> Can you tell me how you apply the H&S? Do you use it as a cleanser
for the
> face or just put the suds on after you cleanse?
When I shampoo, I also use it on my face. You could say I use it as a
cleanser, because the days I use H&S Intensive Treatment, I don’t
wash my face with anything else.
January 31st, 2003 at 8:28 pm
Fellow sufferers,
Glad to see so many new folks on the list!
I used Protopic and H&S Intensive Treatment for about a week, then I
stopped using Protopic and continue with H&S only, and my skin is
still in good condition, no flakes, 90-95% less redness. This stuff
works, that’s for sure. I can actully go out in public without
feeling like an alien!
Winter has just arrived here in Sweden today, and with that cold and
dry air, which usually means my seb derm would become worse, but it
has actully helped my otherwise oily skin to not being so damn oily.
Ahh.. I think I’m going to enjoy this winter!!
February 14th, 2003 at 11:24 am
Hi
Just thought I would update you on my situation.
I have been using protopic to great effect for about 5 days now and it has
really boosted my confidence..HOWEVER, I went for a pint of lager last night and
as I sat there I could feel my face getting hot and sore to such an extent I
left the pub and went home.
My face was bright red in the places where I have the seb derm,i.e. where I have
been using the Protopic…
I neglected to use any protopic last night and my face although it has calmed
down is still red and i feel gutted, back to square one.
Has anybody else had this response? Am I allergic to alcohol, or is this a
natural reaction that will gradually subside?
J
February 14th, 2003 at 7:25 pm
hi j , yeh same thing sort of happeniingto me, ive had the protopic for 2
days and seeing positive effects ,but have had a drink last night and
slightly flared . im drinking heaps of water ,especially before i know im
going out for a drink, give it a go without alcohol for 2 weeks or so and
thehn see if u have built up enuf resistance, thats what im gona try
anyways . if i can build it up into a good condition i will keep myself to
1 night a week drinking .
cheers dave
February 15th, 2003 at 7:42 am
Bit gutting if we have to knock the drink on the head and cut it out completely.
I know it`s not everything to drink but at this time of the year it`s hard not
to.
Last thing i want to do is go to the Christmas parties and look like a clown.
Glad you are also seeing the benefit of Protopic.
J
February 15th, 2003 at 3:43 pm
hi j , yeh true, saying that i had a few drinks this w/e . well more than
a few and didint really get the flare up ,so seems intermitent. im just
drinking shitloads of water and getting as much sleep as possible when
possible as this works for me , if i get run down my skin goes to pot .
im still using the protopic once a day (o.3) and seem to be getting slowly
better. i ve actually got to the stage where ive said to myself if my skin
stays the same as it is today for the rest of my life ,i’d take it. thats
the sort of improvemnt ive had in only a week . its not perfect but the
paranoa is at bay and i feel 3/4 normal . lets hope it lasts .
dave
February 16th, 2003 at 3:59 am
Glad to hear it Dave, hope it keeps up for you.
I tried to have a few on Saturday but again my face started burning so I had to
give up.
I`ve noticed that the area either side of my nose have dramatically improved but
the area between my eyebrows still seems to be sore and red..I wonder how long
this will take to clear? If at all..?
Generally impressed but still a way to go.
J
February 16th, 2003 at 12:01 pm
what sort of regime do you have , ie does you wash and clean the areas
with a non sensative soap .or you juast keep applying protopic ontop
daily.as eventhough the cleaning may irritate the areas slightly im
finding that its imperative to do so for longterm improvement and then
reapply as there is no build up of cream on the skin.
also vary your drinks to see what flares and what doesnt , im
experimenting with drinks that say hydrate somewhat at the same time
v/tonic v/fresh orange v/l/soda etc…… keep clear of wines if
possiblea s they are one of the worst…..drink loads of water daily,from
the roscacea III sheet i got a few weeks ago it said s.d and roscaca
sufferes need to drink twice as much as the normal person to chill the
inner parts so overheating and flushing doesnt happen and i takes a while
for this transision to happen (3/4 litres aday in my opinion and avoid
diet soft drinks as they have caffeine etc.
dave
February 17th, 2003 at 6:28 pm
just thought i’d update.still going ok with he protopic fyg ,but as ive
been deprived of a half decent appearance for a few years ive made the
usual mistsake of going out alot(drinking aswell) so not benefiting
fully, but nearly normal still and not complaining, may even have a social
and happy (non paranoid) xmas,you never know, good old protopic…
im going back to the uk in a week or so and wondering how the protopic
will handle the climate change(i live in bahrain), this usually gives my
skin hell for the few weeks im in uk at winter time.
March 1st, 2003 at 4:31 am
how u gettin on with the protopic? im back in uk at moment and still going
ok ish, not as good as first but when thinking that been of steroids now
for 3 months and no rebound ,more than happy .let me know . AND ANY OTHER
PROTOPIC USERS. by the way went to my derm here in jersey ,chanel islands
this week and he tells me that protopic will be available in uk
soon(ish),but because of the cost it may not be prescribable and only sold
private,typical english attitude. as if 100 pounds is alot to get rid of
this damn thing. speak laters
March 1st, 2003 at 4:47 pm
Hiya mate
Yes still using it to great effect, I only apply it at night as for one it`s bloody expensive and the other is that you look like a real shiny head…kinda sticky..
I wash my face in the morning and after a while find that it still has the Protopic on it as my face is real shiny, small problem if it helps this complaint.
Tried drinking on it again, flares real bad after say one pint, then goes back to semi normal. I have my first christmas party tomorrow so get this, i`m going to have a beer in my car, then hopefully when the burning subsides i`ll be ready to party…otherwise i`ll look like a freak.
Regards
J
March 2nd, 2003 at 12:49 am
haha ! desperate measures by a desperate man, have a good one.
March 3rd, 2003 at 5:24 pm
hows things with the prtopic mate, im now starting to get meduim to god
results . i think because it worked so well at first i went out like mad
and got wasted,late night ,didint drink as much water than i was. i have
to start again slightly. still not the protopics fault i suppose unless
its having less effect than at first , i duno?? you??
dave
March 4th, 2003 at 5:41 am
Hiya mate, hope things are well.
Yes, Protopic going pretty well thanks. I am trying not to use it every day as
it is so expensive but notice that when I do stop after a couple of days the seb
derm starts to re-appear.
I have also noticed that my face no longer flushes bright red immediately after
alcohol, so I`m pretty happy right now.
One thing I do notice is that as it is so sticky I only apply Protopic at night
and then wash my face with warm water the following day, into the afternoon my
face becomes really greasy, I suppose because it hasn`t fully disappeared..I
have had a few comments like shiny face etc…but that`s cool.
My scalp is really bothersome at the moment though. I have used Nizoral for ages
now and it doesn`t seem to be helping much now, any suggestions..
Laters
J
March 4th, 2003 at 11:51 pm
hi mate, well as i said mines similar to yours but ive been ripping the
sh#t out of the booze over xmas so not really fair to blame the protpic.
yes , also find that the shinyness does seem to stay around for a long
time after putting it on , like even the next day after you put it on the
night previous. got to get back to drinking loads of water as this helps
majorly but you have to keep it going for a week or two before you start
seeing the results of water. the scalp thing with me changes with the
weather/change between seasons then subsides to good after the temperature
flattens out.erm apart from nizoral i just change around with off the
shelf shampoos that are healthy looking and just mix these up with nizoral
,one day off one day on.
im in hk on my way to sydney so im struggling face wise at the moment. i
dont know about you but when flying my skin goes to pieces literally no
matter what .
speak soon drink water 2/3 litres aday , it works !
April 18th, 2003 at 2:19 am
Hi,
Well, I’ve been using Protopic for the last 5 days. I apply a little
on my face each night before bed. I alternate - one night I’ll use
just Protopic and the next I’ll use selenium sulfide shampoo, wash
that off, then apply Protopic. What I’m hoping to do is wean myself
off the Protopic and just use the selenium sulfide shampoo. I’m still
hoping that I’m just in a transitional phase and that sooner or later
the selenium sulfide will kick in. So far the results with Protopic
have been good. By the second or third day my face was much less
tight, dry, oily and flaky and quite a bit less red. I still have
some redness in the middle of my face, but the Protopic seemed to
even out my overall facial complexion. I did feel some extra warmth
in my face on a couple of occasions the first two days, but that’s
mostly gone now.
So, for the others who have used Protopic, does this sound like your
experience? Some have mentioned that Protopic stopped working for
them after a while. How long did it work for you? Have you thought
about trying Elidel? From what I’ve read, that one seems to be even
more effective and easier to apply.
Anyway, just wanted to keep everyone up to date. Thanks for all your
posts last week.
Tim